Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation

Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic dise...

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Published in:Journal of religion and health
Authors: de Alvarenga, Willyane Andrade (Author) ; Arnold, Benjamin (Author) ; Bredle, Jason (Author) ; Bullinger, Monika 1954- (Author) ; Leite, Ana Carolina Andrade Biaggi (Author) ; Mühlan, Holger (Author) ; Nascimento, Lucila Castanheira (Author) ; Schmidt, Silke 1970- (Author) ; Vieira, Margarida (Author) ; de Carvalho, Emília Campos (Author) ; de Castro Coelho, Robson (Author) ; dos Santos, Claudia Benedita (Author)
Format: Electronic Article
Language:English
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Published: Springer Science + Business Media B. V. [2019]
In: Journal of religion and health
Year: 2019, Volume: 58, Issue: 6, Pages: 2219-2240
Further subjects:B Spirituality
B Proxy
B Parents
B Psychometrics
B Spiritual well-being
B Adolescents
B Validation studies
Online Access: Volltext (Resolving-System)

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520 |a Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil. 
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