What can we Learn from Patients’ Ethical Thinking about the right ‘not to know’ in Genomics? Lessons from Cancer Genetic Testing for Genetic Counselling

This article is based on a qualitative empirical project about a distinct kinship group who were among the first identified internationally as having a genetic susceptibility to cancer (Lynch Syndrome). 50 were invited to participate (42 were tested; eight declined genetic testing). 15, who had all...

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Bibliographic Details
Main Author: Cowley, Lorraine (Author)
Format: Electronic Article
Language:English
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Published: Wiley-Blackwell [2016]
In: Bioethics
Year: 2016, Volume: 30, Issue: 8, Pages: 628-635
RelBib Classification:NCH Medical ethics
ZB Sociology
Further subjects:B Ethics
B genetic counselling
B cancer susceptibility
B genetic test decliners
B Moral Identity
B right not to know
B social implications
Online Access: Volltext (Verlag)
Volltext (doi)