The Wish Kite
The author's eight-year-old daughter, Sarah, already suffering from a debilitating genetic muscular-skeletal disease (Fibrodysplasia Ossificans Progressiva or FOP) is diagnosed with a noncancerous brain tumor (Craniopharyngioma). She is taken to Children's Hospital of Philadelphia, where a...
| Main Author: | |
|---|---|
| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
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| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Published: |
Routledge
2004
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| In: |
Journal of religion, disability & health
Year: 2004, Volume: 7, Issue: 4, Pages: 55-63 |
| Further subjects: | B
fibrodysplasia ossificans progressiva
B pediatric neurosurgery B brain tumor B Craniopharyngioma |
| Online Access: |
Volltext (lizenzpflichtig) |
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| 520 | |a The author's eight-year-old daughter, Sarah, already suffering from a debilitating genetic muscular-skeletal disease (Fibrodysplasia Ossificans Progressiva or FOP) is diagnosed with a noncancerous brain tumor (Craniopharyngioma). She is taken to Children's Hospital of Philadelphia, where a neurosurgeon who specializes in treating craniopharyngiomas works, and next door to the Hospital of the University of Pennsylvania, where leading research into FOP is conducted. Treatment protocols for the tumor are discussed, but the final decision to do surgery is made, indirectly, by Sarah herself, when she sings her school's theme song, “Accentuate the Positive,” in the doctor's office. | ||
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| 650 | 4 | |a fibrodysplasia ossificans progressiva | |
| 650 | 4 | |a pediatric neurosurgery | |
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