Bridging the Challenges: The Effects of FOP on the Family
A personal account of family life with a disabled child. The author describes her experience of the grief process following diagnosis, the particular challenges associated with the rare orthopaedic condition, fibrodysplasia ossificans progressiva (FOP), and the effects on the family when one member...
Main Author: | |
---|---|
Format: | Electronic Article |
Language: | English |
Check availability: | HBZ Gateway |
Journals Online & Print: | |
Fernleihe: | Fernleihe für die Fachinformationsdienste |
Published: |
Routledge
2000
|
In: |
Journal of religion, disability & health
Year: 2000, Volume: 3, Issue: 3, Pages: 5-23 |
Further subjects: | B
orthopaedic
B Sarah B FOP B Family B Bone B Coping B Craniopharyngioma |
Online Access: |
Volltext (lizenzpflichtig) |
MARC
LEADER | 00000naa a22000002 4500 | ||
---|---|---|---|
001 | 1766045235 | ||
003 | DE-627 | ||
005 | 20210810164536.0 | ||
007 | cr uuu---uuuuu | ||
008 | 210810s2000 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1300/J095v03n03_02 |2 doi | |
035 | |a (DE-627)1766045235 | ||
035 | |a (DE-599)KXP1766045235 | ||
040 | |a DE-627 |b ger |c DE-627 |e rda | ||
041 | |a eng | ||
084 | |a 0 |2 ssgn | ||
100 | 1 | |a Hair, Marilyn S. |e VerfasserIn |4 aut | |
245 | 1 | 0 | |a Bridging the Challenges |b The Effects of FOP on the Family |
264 | 1 | |c 2000 | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a Computermedien |b c |2 rdamedia | ||
338 | |a Online-Ressource |b cr |2 rdacarrier | ||
520 | |a A personal account of family life with a disabled child. The author describes her experience of the grief process following diagnosis, the particular challenges associated with the rare orthopaedic condition, fibrodysplasia ossificans progressiva (FOP), and the effects on the family when one member has extensive needs. She speaks to the value of a support group and summarizes with a list of ten things she has learned as the mother of a disabled child. | ||
601 | |a Challenger | ||
650 | 4 | |a Bone | |
650 | 4 | |a FOP | |
650 | 4 | |a Sarah | |
650 | 4 | |a Coping | |
650 | 4 | |a Craniopharyngioma | |
650 | 4 | |a Family | |
650 | 4 | |a orthopaedic | |
773 | 0 | 8 | |i Enthalten in |t Journal of religion, disability & health |d [Erscheinungsort nicht ermittelbar] : Routledge, 1999 |g 3(2000), 3, Seite 5-23 |h Online-Ressource |w (DE-627)366026801 |w (DE-600)2112749-9 |w (DE-576)105935026 |x 1522-9122 |7 nnns |
773 | 1 | 8 | |g volume:3 |g year:2000 |g number:3 |g pages:5-23 |
856 | 4 | 0 | |u https://doi.org/10.1300/J095v03n03_02 |x Resolving-System |z lizenzpflichtig |3 Volltext |
951 | |a AR | ||
ELC | |a 1 | ||
ITA | |a 1 |t 1 | ||
LOK | |0 000 xxxxxcx a22 zn 4500 | ||
LOK | |0 001 3964642134 | ||
LOK | |0 003 DE-627 | ||
LOK | |0 004 1766045235 | ||
LOK | |0 005 20210810164122 | ||
LOK | |0 008 210810||||||||||||||||ger||||||| | ||
LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
LOK | |0 092 |o n | ||
LOK | |0 852 |a DE-Tue135 | ||
LOK | |0 852 1 |9 00 | ||
LOK | |0 935 |a ixzs |a ixzo |a rwrk | ||
ORI | |a SA-MARC-ixtheoa001.raw | ||
REL | |a 1 | ||
SUB | |a REL |